This is me touching Charlie the other day. You have to do this thing called a “comfort hold” where you lightly place one hand on his head and the other on his feet. You don’t stroke the skin at all and have to be careful to stay away from all tubes and where he had his surgery. He’s at a point right now where he really can’t have too much stimulation but he definitely responds to touch. Kendall and I can both feel him “hugging” us with his little foot. The reason his head and eyes are covered is because he was getting light treatment for jaundice but yesterday his head was completely exposed and so cute. There was a problem yesterday with his breathing tube which was scary but they managed to resolve it. We have a big meeting this morning with the doctors including the neurologist.
Look at how Charlie reached out and grabbed my finger in the photo below. Don’t worry, he’s not amphibious, he really has five perfect fingers, not three!
Still working on living in the moment, always a challenge for me and one I MUST finally master. I’m doing my best to stay above water and will be getting some help. I’m not great yet and I feel the bodily effects of two weeks of pretty major trauma. Still looking for that new normal and trust we will find it. Still trying to comprehend what has happened and to grieve our other son. Still filled with gratitude at all the good thoughts, prayers, and love coming our way.